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Finding Inspiration in Every Turn

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Monika Marinova - founder of Association of Tarlov Patients in Bulgaria

Monika Marinova is a patient with Tarlov's Perineural Cysts. She is from Stara Zagora and is married and has two daughters. She underwent surgery for her illness successfully in 2015 in Cyprus. After many troubles and obstacles as a patient, in early 2019 she founded the Association of Tarlov Patients in Bulgaria - Treatment without Borders. Besides being the founder, she is also the chairman of the association.

"I dreamed of having someone to protect the rights of patients with the rare disease Perineural cysts of Tarlov in Bulgaria and so the idea for the creation of our association was born. This is the mission of my life. That's my calling," says Monica.

Since the establishment of the association, Monica has implemented many initiatives to unite patients, inform the public and is in constant correspondence with institutions in Bulgaria. The association organized the First National Congress on the Rare Disease "Perineural Cysts of Tarlov", published the first book in Bulgaria on the rare disease Perineural Cysts of Tarlov - Trajectories of Suffering and Pain, organized a seminar for mutual assistance for patients with Tarlov's Cysts with psychotherapists .

Monika Marinova - founder of Association of Tarlov Patients in Bulgaria

Monika Marinova is a patient with Tarlov's Perineural Cysts. She is from Stara Zagora and is married and has two daughters. She underwent surgery for her illness successfully in 2015 in Cyprus. After many troubles and obstacles as a patient, in early 2019 she founded the Association of Tarlov Patients in Bulgaria - Treatment without Borders. Besides being the founder, she is also the chairman of the association.

"I dreamed of having someone to protect the rights of patients with the rare disease Perineural cysts of Tarlov in Bulgaria and so the idea for the creation of our association was born. This is the mission of my life. That's my calling," says Monica.

Since the establishment of the association, Monica has implemented many initiatives to unite patients, inform the public and is in constant correspondence with institutions in Bulgaria. The association organized the First National Congress on the Rare Disease "Perineural Cysts of Tarlov", published the first book in Bulgaria on the rare disease Perineural Cysts of Tarlov - Trajectories of Suffering and Pain, organized a seminar for mutual assistance for patients with Tarlov's Cysts with psychotherapists .

117969470_4718929881457978_6304325222410215494_o.jpg
113769256_10224060948500790_8303021573511695004_n_edited.jpg

Monika Marinova - founder of Association of Tarlov Patients in Bulgaria

Monika Marinova is a patient with Tarlov's Perineural Cysts. She is from Stara Zagora and is married and has two daughters. She underwent surgery for her illness successfully in 2015 in Cyprus. After many troubles and obstacles as a patient, in early 2019 she founded the Association of Tarlov Patients in Bulgaria - Treatment without Borders. Besides being the founder, she is also the chairman of the association.

"I dreamed of having someone to protect the rights of patients with the rare disease Perineural cysts of Tarlov in Bulgaria and so the idea for the creation of our association was born. This is the mission of my life. That's my calling," says Monica.

Since the establishment of the association, Monica has implemented many initiatives to unite patients, inform the public and is in constant correspondence with institutions in Bulgaria. The association organized the First National Congress on the Rare Disease "Perineural Cysts of Tarlov", published the first book in Bulgaria on the rare disease Perineural Cysts of Tarlov - Trajectories of Suffering and Pain, organized a seminar for mutual assistance for patients with Tarlov's Cysts with psychotherapists .