Online training: Vigilant parents - training for families with children with rare diseases

On the 25th of June, we will conduct the first of a series of online trainings adapted for Bulgarian families affected by rare diseases.

The trainings are focused on current topics related to rare diseases in children and adults and are specially adapted by the team of the Bulgarian Huntington Association and Frambu Resource Center, partners in the project "Empowerment of people with rare diseases".

The Vigilant Parents training program is coming soon!

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