RESOURCES

EmpoweRARE project resources

Included below are project-related resources and materials

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EmpoweRARE project opening press conference

Full video: http://www.bta.bg/en/video/show/id/0_durzd2wi/

BHA press release (available in Bulgarian): Download here

Full video
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Project INFORMATION BROCHURE

Official project information brochure containing in-depth project description

Download here
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Translation of EURORDIS COVID-19 open letter

Translation of the open letter by EURORDIS regarding COVID-19 instructions (Available in Bulgarian language only)

Download here
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BHA letter addressed to the Healthcare Minister

Letter addressed to the healthcare minister in regard with EURORDIS open letter with recommendations for treatment of people with rare diseases with COVID-19 (Available in Bulgarian language only)

Download here
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Project partner FRAMBU presentation

Presentation describing project partner FRAMBU activities

Download here
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Project partner FRAMBU video presentation

Video presentation of project partner FRAMBU

Watch here
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BHA official position on Action Plan for implementation of the final recommendations to the Republic of Bulgaria addressed by the UN Committee on the Rights of Persons with Disabilities (2021-2026)

Open letter expressing the official position of the Bulgarian Huntington Association on the Action Plan for implementation of the final recommendations to the Republic of Bulgaria addressed by the UN Committee on the Rights of Persons with Disabilities (2021-2026)

 (Available in Bulgarian language only)

Download here

This document was created with the financial support of the Active Citizens Fund in Bulgaria under the Financial Mechanism of the European Economic Area.

The sole responsibility for the content of the document lies with the Bulgarian Huntington Association and under no circumstances can it be assumed that this document reflects the official opinion of the Financial Mechanism of the European Economic Area and the Operator of the Active Citizens Fund in Bulgaria.