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RESOURCES
EmpoweRARE2021 project resources
Included below are project-related resources and materials
EmpoweRARE2021 project opening press conference
Full video: http://www.bta.bg/en/video/show/id/0_durzd2wi/
BHA press release (available in Bulgarian): Download here
Project INFORMATION BROCHURE
Official project information brochure containing in-depth project description
Translation of EURORDIS COVID-19 open letter
Translation of the open letter by EURORDIS regarding COVID-19 instructions (Available in Bulgarian language only)
BHA letter addressed to the Healthcare Minister
Letter addressed to the healthcare minister in regard with EURORDIS open letter with recommendations for treatment of people with rare diseases with COVID-19 (Available in Bulgarian language only)
Project partner FRAMBU presentation
Presentation describing project partner FRAMBU activities
BHA official position on Action Plan for implementation of the final recommendations to the Republic of Bulgaria addressed by the UN Committee on the Rights of Persons with Disabilities (2021-2026)
Open letter expressing the official position of the Bulgarian Huntington Association on the Action Plan for implementation of the final recommendations to the Republic of Bulgaria addressed by the UN Committee on the Rights of Persons with Disabilities (2021-2026)
(Available in Bulgarian language only)
Open letter to Ministry of Health
Open letter expressing the official position of the Bulgarian Huntington Association on the urgency of providing vaccines against COVID-19 to people with rare diseases in Bulgaria
(Available in Bulgarian language only)
Answer to open letter to the Ministry of Health
Official answer to the open letter by the Chief State Health Inspector (Available in Bulgarian language only)
Official stance letter by BHA
Bulgarian Huntington Association opinion piece on the Decree amending the Methodology for conducting individual assessment in support of the needs of people with disabilities
(Available in Bulgarian language only)
Request letter Article 95
Letter requesting to have the list of chronic diseases under Article 95, paragraph 3, of Ordinance №10 / 01.09.2016 of the Ministry of Education and Science for organization of activities in school education updated.
(Available in Bulgarian language only)
