RESOURCES

EmpoweRARE project resources

Included below are project-related resources and materials

DSC03214.JPG

EmpoweRARE project opening press conference

Full video: http://www.bta.bg/en/video/show/id/0_durzd2wi/

BHA press release (available in Bulgarian): Download here

Logopit_1576356145501.png

Project INFORMATION BROCHURE

Official project information brochure containing in-depth project description

Logopit_1576356145501.png

Translation of EURORDIS COVID-19 open letter

Translation of the open letter by EURORDIS regarding COVID-19 instructions (Available in Bulgarian language only)

Logopit_1576356145501.png

BHA letter addressed to the Healthcare Minister

Letter addressed to the healthcare minister in regard with EURORDIS open letter with recommendations for treatment of people with rare diseases with COVID-19 (Available in Bulgarian language only)

Logopit_1576356145501.png

Project partner FRAMBU presentation

Presentation describing project partner FRAMBU activities

Logopit_1576356145501.png

Project partner FRAMBU video presentation

Video presentation of project partner FRAMBU

Logopit_1576356145501.png

BHA official position on Action Plan for implementation of the final recommendations to the Republic of Bulgaria addressed by the UN Committee on the Rights of Persons with Disabilities (2021-2026)

Open letter expressing the official position of the Bulgarian Huntington Association on the Action Plan for implementation of the final recommendations to the Republic of Bulgaria addressed by the UN Committee on the Rights of Persons with Disabilities (2021-2026)

 (Available in Bulgarian language only)

Logopit_1576356145501.png

Open letter to Ministry of Health

Open letter expressing the official position of the Bulgarian Huntington Association on the urgency of providing vaccines against COVID-19 to people with rare diseases in Bulgaria
(Available in Bulgarian language only)

Logopit_1576356145501.png

Answer to open letter to the Ministry of Health

Official answer to the open letter by the Chief State Health Inspector (Available in Bulgarian language only)

Logopit_1576356145501.png

Official stance letter by BHA

Bulgarian Huntington Association opinion piece on the Decree amending the Methodology for conducting individual assessment in support of the needs of people with disabilities
(Available in Bulgarian language only)

Logopit_1576356145501.png

Request letter Article 95

Letter requesting to have the list of chronic diseases under Article 95, paragraph 3, of Ordinance №10 / 01.09.2016 of the Ministry of Education and Science for organization of activities in school education updated.
(Available in Bulgarian language only)