RESOURCES

EmpoweRARE project resources

Included below are project-related resources and materials

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EmpoweRARE project opening press conference

Full video: http://www.bta.bg/en/video/show/id/0_durzd2wi/

BHA press release (available in Bulgarian): Download here

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Project INFORMATION BROCHURE

Official project information brochure containing in-depth project description

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EmpoweRARE newsletter (Issue 1)

Official project newsletter (January 2020)

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Translation of EURORDIS COVID-19 open letter

Translation of the open letter by EURORDIS regarding COVID-19 instructions (Available in Bulgarian language only)

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Educational material for 1st EmpoweRARE training

Training material for the 1st EmpoweRARE training on 26.04.2020 (Available in Bulgarian language only)

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1st EmpoweRARE training seminar on-line video

On-line video of the 1st project training seminar (Bulgarian language)

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1st training seminar Questionnaire with correct answers and Case Study

Sample of the questionnaire provided to participants in the 1st EmpoweRARE training seminar with the correct answers to the test questions and Training Case Study (Available in Bulgarian language only)

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Report on the 1st training seminar of the project

Report analyzing the data and feedback collected by the participants of the 1st training seminar of the EmpoweRARE project

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EmpoweRARE newsletter (Issue 2)

Official project newsletter (April 2020)

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BHA letter addressed to the Healthcare Minister

Letter addressed to the healthcare minister in regard with EURORDIS open letter with recommendations for treatment of people with rare diseases with COVID-19 (Available in Bulgarian language only)

This document was created with the financial support of the Active Citizens Fund in Bulgaria under the Financial Mechanism of the European Economic Area.

The sole responsibility for the content of the document lies with the Bulgarian Huntington Association and under no circumstances can it be assumed that this document reflects the official opinion of the Financial Mechanism of the European Economic Area and the Operator of the Active Citizens Fund in Bulgaria.