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HELPLINE 080030097

РЕСУРСНА ПЛАТФОРМА

МАТЕРИАЛИ

Материали по проект ОВЛАСТЯВАНЕ

НА ХОРА С РЕДКИ БОЛЕСТИ

Презентация „Бдителни родители“

Презентация на проф. Кристоф Ярмесдал, клиничен психолог и изследовател от FRAMBU

Empowerment Handbook

Empowerment Handbook EmpoweRARE: Empowering people with rare diseases (Bulgarian language document)

Доклад с препоръки към институции

Доклад към институции в който е включен обзор на писма и становища част от Застъпническа кампания търсеща решения за проблемите на хората с редки болести в България

Сборник полезни правни материали и институции

Сборник с полезни правни материали и институции за хора с увреждания

Video recording of 4th training

Recording of complete 4th training

Video recording of bilateral online seminar (Day 2)

Recording of Day 2 of the bilateral online seminar with participation from BHA and FRAMBU (Date: 28.02.2021)

Video recording of bilateral online seminar (Day 1)

Recording of Day 1 of the bilateral online seminar with participation from BHA and FRAMBU (Date: 27.02.2021)

Report and analysis of the questionnaire of the 3rd training seminar of the project

Report analyzing the data and feedback collected by the participants of the 3rd training seminar of the EmpoweRARE project (Available only in Bulgarian language)

Video recording of 3rd training

Recording of complete 3rd training

Educational material for 3rd EmpoweRARE training

Educational material for 3rd EmpowerRARE project training

Invitation and program to 3rd training seminar

Invitation to participants of 3rd training seminar and its program

Report with results of 2nd training questionnaire

Analytical report of answers given by participants in 2nd training

2nd training presentations: Mrs. Elka Todorova

2nd lecture by Mrs. Elka Todorova

2nd training presentations: Mrs. Lila Angelova

Mrs. Lila Angelova's lecture

2nd training presentations: JAMBA presentation

JAMBA project training presentation

2nd training presentations: Mrs. Elka Todorova

1st lecture by Mrs. Elka Todorova

Video recording of 2nd training

On-line accessible recording of complete 2nd training

Invitation to 2nd training and program

Invitation to participants of 2nd project training with the program

Educational material for 2nd EmpoweRARE training

Educational material for 2nd EmpowerRARE project training

Report on the 1st training seminar of the project

Report analyzing the data and feedback collected by the participants of the 1st training seminar of the EmpoweRARE project

1st training seminar Questionnaire with correct answers and Case Study

Sample of the questionnaire provided to participants in the 1st EmpoweRARE training seminar with the correct answers to the test questions and Training Case Study (Available in Bulgarian language only)

Educational material for 1st EmpoweRARE training

Training material for the 1st EmpoweRARE training on 26.04.2020 (Available in Bulgarian language only)

1st EmpoweRARE training seminar on-line video

On-line video of the 1st project training seminar (Bulgarian language)

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